Norm, Valentina, Beya, Papa and myself went to a bone marrow drive in honor of Liam Barrett. Norm worked with Liam's dad, James, while the doctors were trying to figure out what was wrong with Liam. Liam's mom, Stacey, has been a comfort to me during sissy's whole illness and especially so after her passing.
James and Stacey were chosen to go to go to the East Coast to tell about their story and put pressure on the people who write the bills and enact laws to have SCID's automatically be something a newborn is tested for at birth. It is already being done in New York and several other states are following suit.
We just wish we could have been more helpful. Norm is already on the bone marrow registry, I am unable to due to my neck and back problems, Valentina can't since she is under 18, Papa was unable to due to his age so the lone person who was able to become a donor candidate was Beya.
Also, please consider giving blood. I had never really thought much of it...... until I saw sissy receiving blood transfusion after blood transfusion during the week she was in the hospital. You can be damn sure I'll be donating blood as often as I can.
So this is my soap box post for the day.
Go to Be The Match and please consider giving blood on a regular basis.